The Answer

So after a very long time we have our answer. Daniel has been diagnosed with Friedreich's Ataxia. We are relieved to finally have an answer. You can read more about it here http://www.ninds.nih.gov/disorders/friedreichs_ataxia/detail_friedreichs_ataxia.htm I'm still researching it so I can't answer very many questions because what I know comes off these pages. Here is another site http://www.rarediseases.org/rare-disease-information/rare-diseases/byID/7/viewAbstract Beau and I haven't talked about it because he had to go straight back to work, but we might consider participating in research and now have a cause to raise awareness about. I am also determined to help Daniel live the fullest life and give him every experience I can. Be sure and read how it was inherited, I can explain that more if you need, but the rest I'm still figuring out. One last thing, it will be so nice to walk into school this year and have some information to give the teachers so they know what it is.